Dynamic Consent Publications

2022-REF1 Whitley, E. A., and Pujadas, R. (2022).REF Impact Case Study: Ensuring the fair treatment of Open Banking customers,. URL
2016-J3 Spencer, K., Sanders, C., Whitley, E. A., Lund, D., Kaye, J., and Dixon, W. G. (2016).Patient perspectives on sharing anonymised personal health data using a digital system for dynamic consent and research feedback: a qualitative study, Journal of Medical Internet Research 15(4), e66. ISSN:0959-8138 DOI
2015-J1 Kaye, J., Whitley, E. A., Lund, D., Morrison, M., Teare, H., and Melham, K. (2015).Dynamic Consent – A Patient Interface for 21st Century Research Networks, European Journal of Human Genetics 23(2), 141–146. ISSN:1018-4813 DOI
2015-J2 Teare, H., Morrison, M., Whitley, E. A., and Kaye, J. (2015).Towards “engagement 2.0”: Insights from a study of dynamic consent with biobank participants, Digital Health 1(1). ISSN:2055-2076 DOI
2015-J3 Williams, H., Spencer, K., Sanders, C., Lund, D., Whitley, E. A., Kaye, J., and Dixon, W. G. (2015).Dynamic consent: a possible solution to improve patient confidence and trust in how electronic patient records are used in medical research, Journal of Medical Internet Research 3(1). ISSN:1438-8871 DOI
2014-J4 Dixon, W. G., Spencer, K., Williams, H., Sanders, C., Lund, D., Whitley, E. A., and Kaye, J. (2014).Letter: A dynamic model of patient consent to sharing of medical record data, British Medical Journal 348, g1294. ISSN:0959-8138 DOI
2013-BS2 Whitley, E. A. (2013).Towards effective, consent based control of personal data, in Digital Enlightenment Forum YearbookK. O’Hara, M. Hildebrandt, and M. Waidner (eds.), IOS Press Amsterdam, 165–176. ISBN:978-1-61499-294-3
2012-J2 Whitley, E. A., Kanellopoulou, N., and Kaye, J. (2012).Consent and Research Governance in Biobanks: Evidence from Focus–groups with Medical Researchers, Public Health Genomics 15(5), 232–242. ISSN:1662-4246 DOI
2011-J2 Kaye, J., Whitley, E. A., Kanellopoulou, N., Creese, S., Lund, D., and Hughes, K. (2011).Letter: Dynamic consent: a solution to a perennial problem?’, British Medical Journal. ISSN:0959-8138
2010-CO1 Whitley, E. A., and Kanellopoulou, N. (2010).Privacy and informed consent in online interactions: Evidence from expert focus groups, Presented at the International Conference on Information Systems, St Louis, MI, USA.
2009-J3 Whitley, E. A. (2009).Informational privacy, consent and the “‘control’” of personal data, Information Security Technical Report 14(3), 154–159. ISSN:1363-4127 DOI